On Rare Disease Day, we recognize the 300 million people living with a rare disease – many facing long, uncertain journeys to diagnosis and treatment. For us at Inizio Engage XD, this isn’t just a statistic; it’s personal.
Michael Spitaliotis, from our PX+CX (Patient Experience + Customer Experience) team, knows firsthand how access to the right information can change lives. Living with a rare disease, IgA Nephropathy, was challenging however once he had found the right healthcare team, they provided options. That’s why we’re committed to bridging the gap, empowering HCPs and patients with the knowledge they need to navigate these challenges.
Listen to his story below.
Jump to a slide with the slide dots.
Hillary Brown
Explore how authenticity is reshaping internal communication. Why real, unfiltered messaging matters more than ever in today’s workplace.
Read more
Colin Melville
AI avatars are here... but are we using them well? Discover why directing your digital twin takes more than tech, and how storytelling, editing...
Read more
Amy Bennett
Patient-friendly writing isn’t just about clarity. It’s about human connection, empathy, and co-creating content that truly resonates. Here’s how...
Read more